Banca de DEFESA: TATIANA SOUZA OLIVEIRA

Uma banca de DEFESA de MESTRADO foi cadastrada pelo programa.
DISCENTE : TATIANA SOUZA OLIVEIRA
DATA : 08/08/2019
HORA: 14:00
LOCAL: Auditório da Biblioteca Universitária de Saúde - BUS
TÍTULO:

“THE CHILDREN OF ZIKA”: meanings attributed to the association between microcephaly and Zika virus epidemic, by caregivers of the affected children and their care experiences

PALAVRAS-CHAVES:

Zika virus; microcephaly; experience; caregive.

PÁGINAS: 164
GRANDE ÁREA: Ciências da Saúde
ÁREA: Saúde Coletiva
RESUMO:

The epidemic of the Zika virus, which was characterized as a mild infection, began to take on the national scene when a possible association with the increase in the number of microcephaly cases in children was suggested. From the doctors' suspicion to recognition by the Ministry of Health, the feeling of uncertainty only increased. The birth of children with brain malformations, hitherto little seen by the media and the authorities, has become a concern that required fast decision-making and the need to disseminate information. It is striking how the less privileged classes were mostly hit. Thus, the family impact that this event has caused and the process of vulnerability to which the most affected families were exposed decades ago in Brazil, aroused the interest in researching on this subject. Overall objective: To understand the meanings attributed by caregivers of children with ZIKV associated microcephaly to such an event and how these meanings relate (or not) to their care experiences. Specific objectives: to identify the caregivers' view on the etiology of microcephaly associated with ZIKV, as well as the possible role of the State in relation to the control of some of its determinants; understand the caregivers' gaze in front of this child, considering their experience of care; to identify if the situations of vulnerability to which these families are exposed, are present in their narratives. Methodological strategies: A qualitative research was carried out involving mothers of children with ZIKV associated microcephaly seen at the Sarah / Salvador unit of the Sarah Network of Locomotor Apparatus Hospitals. Initially, a sociodemographic survey of 261 mothers of children diagnosed with microcephaly and ZIKV, attended at that unit, was carried out through chart analysis. Then, semi-structured interviews were conducted with 25 of these mothers, recorded and transcribed. The thematic analysis of content of the transcriptions, guided by Symbolic Interactionism, was carried out. Results: The majority of mothers attended came from peripheral districts of Salvador and from the interior, and education was predominant among those who attended high school. It was observed that mothers have no doubt that microcephaly is a consequence of virus contamination. The media were the main sources of information. Despite recognizing the increased environmental risks to which they are exposed, most mothers do not relate them to social inequalities. The meanings attributed to the relationship between the epidemic and the microcephaly are directed to experiences of biographical rupture, which situate the challenges faced in the family and work context. These challenges involved the abandonment of work activities, social isolation and the need to seek help to support the shared care of their children. The interactions that emerged with the epidemic, the gestation and birth of a child with microcephaly by ZIKV led these mothers to re-signify the care of their children, their life projects and to organize themselves as a new collective subject. Conclusions: By bringing the caregivers' understanding of the phenomenon to the table, we foster the debate with the objective of giving visibility to these children and their families, aiming at discussing policies that can support them in face of the permanent illness and the absence of State as intermediary of this process.

MEMBROS DA BANCA:
Externo ao Programa - 1524738 - ALESSANDRA SANTANA SOARES E BARROS
Interno - 1433789 - JORGE ALBERTO BERNSTEIN IRIART
Interno - 1681913 - MARCELO EDUARDO PFEIFFER CASTELLANOS