Banca de DEFESA: CINTIA FIGUEIREDO AMARAL

Uma banca de DEFESA de MESTRADO foi cadastrada pelo programa.
STUDENT : CINTIA FIGUEIREDO AMARAL
DATE: 07/03/2024
TIME: 09:00
LOCAL: Auditório da Biblioteca Universitária de Saúde
TITLE:

TRAJETÓRIAS DE VIDA DE MULHERES E INTERSECCIONALIDADES: EXPERIÊNCIAS DE CUIDADO DAS MÃES DE CRIANÇAS COM A SÍNDROME CONGÊNITA DO ZIKA VÍRUS

KEY WORDS:

Zika virus epidemic; biographical rupture; solo motherhood.

Congenital Zika Virus Syndrome; care routine; intersectionality.

PAGES: 95
BIG AREA: Ciências da Saúde
AREA: Saúde Coletiva
SUMMARY:

Between 2015 and 2016, Brazil was hit by the Zika Virus epidemic, with an increase in the number of cases of children with microcephaly due to infection with this virus, resulting in Congenital Zika Virus Syndrome (CZVS). When we think about the life trajectory of women who have had children with CZVS and its repercussions, we consider that there has been a biographical rupture, a disruptive event that transforms and redirects the course of life. The aim of this study is to understand how care experiences affect the life trajectory of women who have become mothers of a child with Zika Virus Congenital Syndrome. This is a feminist study, anchored in the theoretical and methodological approach of intersectionality, which used narrative interviews with nine women to produce the empirical data. The results show that the beginning of the biographical rupture occurs with the discovery of the diagnosis, which happened at different times: during pregnancy, at birth and during the course of the child's development. The impact and mobilisation of the news was unanimous, aggravated by the unethical and unwelcoming behaviour of some doctors when informing them of the diagnosis and during follow-up. The loneliness of atypical black motherhood exposed the fragility of the support network, so that all the women had to stop working and studying to dedicate themselves to caring for the child. As well as making it possible to organise for the struggle for rights, activism provided new perspectives for reinvention through the formation and strengthening of support networks among these women and the creation of NGOs.

The Zika virus epidemic was a major public health problem. At the time, the Brazilian Ministry of Health declared a Public Health Emergency of National Importance (Espin). The consequences of the epidemic still have repercussions today in the daily lives of women affected by the Zika virus who have had children with CZVS and produce different forms of care, crossed by inequalities of gender, race and class. The aim of this study is to understand the perceptions of caring for children with CZVS, the changes in daily life and the challenges present in the narratives of women who have become mothers of a child with Zika Virus Congenital Syndrome. This is a feminist study, anchored in the theoretical and methodological approach of intersectionality, which used narrative interviews with nine women to produce the empirical data. The results suggest that perceptions of care are crossed by the patriarchal logic that women are primarily responsible for domestic activities and care, a place of care that is invisibilised by culture and society, anchored in the premise that a woman's role is to care, even in the face of evidence of structural sexism. There is an exhausting and overburdened routine, added to by the specific care of a child with multiple disabilities, with a fragile support network and an inexpressive contribution from men, especially for poor and black women. In this sense, the idea of self-care is built on the need for basic care and guided by a logic that care is a privilege.

COMMITTEE MEMBERS:
Externa à Instituição - POLYANA APARECIDA VALENTE
Presidente - 2570813 - CLARICE SANTOS MOTA
Interna - 2286127 - DARCI NEVES DOS SANTOS